revisit

Headed to Boston today for a return visit to the geneticist.

Not gonna lie, I’m a bit nervous. Not sure if the doctor will have more questions… or some answers.

The scary part? I’m not sure which I’d rather hear.

Vivienne just so darn perfect to us. In every way. So it’s kinda hard to talk with specialists about “limitations”, “genetic testing” and “syndromes”.

I’ll let y’all know the news, whatever it is. I gotta say, it’s been a big comfort to have y’all along for the ride, as we’ve waited (and might possibly wait some more) for the answers about Vivienne’s medical diagnosis.

Say a prayer for our girl, if you think of it. We’d really appreciate it.

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Comments

  1. Lifting you all up this morning!

  2. Praying for sweet Vivi!

  3. Somewhere In The Sun says:

    Praying…

    ~Lynn

  4. Vivi is so cute ! I am praying for you.

  5. Got your sweet little girl covered in prayers!!!

  6. Will do!!! Have a safe trip!

  7. Hoots Momma says:

    Just said a prayer. Y'all will be on my heart today. God is faithful. He will see y'all through it!

  8. Tara Anderson says:

    Praying for you and Vivi!!!!

  9. Lost and Found says:

    You're right, she is already perfect and will soar regardless of any label given to her. All that matters is that she believes that as she gets older.

  10. I am fearfully and wonderfully made – regardless of the answers she is a child of God and greatly loved! I will remember her and you in my prayers today!

  11. I will be praying that no matter the outcome you will be comforted by the Lords never ceasing presence.

  12. funnylittlepollywogs says:

    Prayers for sweet Vivi!

  13. Ro, Ro, sa, ta, and so says:

    Saying prayers and sending positive thoughts!

  14. snekcip says:

    Praying for Sweet Vivian

  15. Katherine says:

    Lifting you guys up!

  16. Brittnie's Journey says:

    A child of God – beautiful and perfect in every way! Holding you up in prayer today.

  17. clearness says:

    Lots of prayers for you to find the answers in which you seek and the strength and knowledge to handle and fix any news in which you receive.

  18. Prayers for sweet Vivi and whatever plans the Lord has for her. Oh my, she is so perfect.

  19. Team Houston says:

    Sure thing!! Hugs, Michele

  20. chavafor4 says:

    Praying for you all today.

  21. May God continues His blessings upon you all, today and always.

  22. Chandra says:

    Will keep you in my thoughts and prayers today! May you feel His comfort and peace.

  23. praying. for you. for your family and for Viiv.

  24. The Gang's Momma! says:

    Oh, praying today for you all! And this picture is just priceless. How DO you do it? Is your camera in your hip pocket all the time? Do you dress them that gorgeous all the time so you can maximize shots? I've gotta use that camera of mine more often, I think :)

  25. Sean and Lisa says:

    She's absolutely perfect and gorgeous to boot! :)
    Praying for answers and perfect peace.
    Much love!
    Lisa

  26. Patricia/NYC says:

    Praying for that sweet, precious Vivi & for you too!! Safe travels, my friend! You're in our thoughts & prayers, always!
    Hugs…
    Patricia

  27. Praying for your baby girl & you, too.

  28. Nicole A. says:

    Beautifully and wonderfully made, that sweet girlie! Praying for you all today!

    All the best,
    Nicole A. in OH

  29. Happy to pray.

    It will all be fine no matter what, because there is great love.

  30. mamatree says:

    Praying for ya'll!

  31. Praying alongside Miss Vivi!!

  32. Desiree' says:

    Praying!! I completely understand as we are about to go the same route with our Miss Rach

  33. Hoping and praying all goes well. She is perfect and beautiful!!!

  34. just remember what you said— she already is perfect– praying for peace for you while you wait:)

  35. Wife of the Pres. says:

    Praying and so understand where you are. We just got another diagnosis today for our sweet girl. Haven't had the courage lately to face the geneticist again but I know it is time. I also know we'll be seeing him for our Li'l Dude too.

    Anyway hugs, be safe and thank you for sharing so from the heart about the "big bad word": syndrome.

  36. Melissa says:

    She's perfectly and wonderfully made, no matter what. Prayers are with you!

  37. Will say a prayer Stefanie!!!! Come what may, she is perfect and perfectly made for your family!!!

  38. Jessica says:

    I'm praying for you too. She is definitely perfect no matter what. I love seeing all your sweet updates on her. I just love how the older kids fight over her. So sweet.

  39. Prayers offered for all you guys (however it turns out effect the whole family!) Ya know – like you – we've chased all the 'necessary testing' etc – but I wonder sometimes – do we really care? I mean – it's not going to change anything right? Still our child – still loved – still a family member – always will be – whatever is needed – you get the idea. But yeah – still we have the testing….makes me wonder sometimes why we really want to know…

    hugs – holding you guys close –

    aus and co.

  40. Desiree' says:

    You are so blessed to be parent to this precious little girl. Will be praying.
    I understand the teary feeling, there myself. Wondering if I even want to know, would it really change things?? We have three appointments next week, ortho, eye and gentics…

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