Today Vivienne met with the geneticist at Boston Children’s.
Not a whole lot was learned, though. Other than confirming that our girl is growing, along her own sweet little curve, and her legs actually look quite, well… normal.
And that, because of the discrepancy between her relatively normal legs, and her not-so-normal arms, our girl is quite possibly one of a kind.
So much so, that they are going to have an expert in skeletal dysplaysia contact us, to learn more about her.
She truly seems to be a conundrum to all the specialists that she has yet to meet.
We think she’s pretty awesome, too.
The downside of the day was that not only did they try to draw some blood, but they had no success.
The battle ended with no blood,
and one very upset little girl.
But we’re working hard to help her get over it.