Me and my girl were out the other day, just having fun.
She is such a funny little peanut.
She’s fascinated by everything around her.
She has a tendency toward hysterical mispronunciations.
And she laughs constantly.
She’s also one tough cookie. Right now she’s finishing up her fourth week of serial casting. And not one complaint other than asking for a band-aid on her pinky toe.
The serial casting is to increase her dorsiflexion before going into a new pair of AFOs. She’s missing some essential muscles on the top of her teeny tiny feet.
And so, as much as I hate trying to find shoes to fit them, AFOs are the ticket.
Still not sure exactly what the future holds for our Vivienne, due to her extremely rare form of skeletal dysplaysia. We know she’ll be short, because skeletal dysplaysia = dwarfism. We know she’ll eventually need arm lengthening surgery, because of her bilateral arm deformity.
But, from a medical standpoint, that’s all we know.
Because no specialist, doctor, or therapist so far has been able to find anyone else in the whole world like our Vivi Cakes.
Which is actually pretty darn cool.
Ridiculously grateful that I get to be the one to laugh with her.
Vivi’s adorable hair bow is made by my friend Tiffany at Mei Mei and Co. Tiffany is fundraising to bring her little one home from China. Check out her hair bows – crazy adorable – and shop with a beautiful purpose.
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Happy (almost) Sunday, y’all.