Today is a big day for Vivi.She's headed to Boston again.This time with just her Daddy.I had to stay behind. I'm in charge of sick bay and it's many many patients.And it's killin' me not to be there with her.Today is Vivi's long-anticipated appointment with the geneticist.And we're hopeful for some answers.Or even some guesses regarding Vivi's arm deformity.And the possibility of dwarfism.We want answers for her. But more importantly, we want to ascertain that we're doing everything we can to care for her as best we can.And in our hearts, as we fall in love with our … [Read more...]

We made it.Whew.We left home at a little after 8:00 this morning. And we barely made it home in time for the boys' bus at 3:45 this afternoon.It was one very long day. But Vivi did great. She is an amazingly easy-going kid. She loved almost everything about the hospital, most of all the bubble tubes that dotted the waiting area.Only thing she didn't like so much was holding still for the 927 x-rays the doctor ordered. We sang a lot of the ABC song.We were quite impressed by our new orthopedist. He answered many of our questions about Vivi. He gave us some good news. … [Read more...]

We're off to Boston this morning for an appointment with the kiddos at Boston's Children. It will be a follow up for Jude and Shepherd, as their clubfoot has been corrected and they only require twice yearly visits. But for Vivi, this will be her first visit with an orthopedist to see how her little tootsies are doing.We also expect to be referred out for some genetic testing. And, not gonna lie, I'm a little bit nervous. I've fallen so in love with my sweet girl, honestly whatever her special needs are, I know it's going to be okay. For me.I am just nervous for her.I … [Read more...]