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Ni Hao Y'all

when east meets south

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six percent

*update: Jude did great in the MRI. no results until our docs have a look, but so glad this is behind us now. Thank you so much for your prayers.*

Jude came home from China five years ago. He was 16 months and had bilateral, unrepaired clubfoot.

We took him to Iowa for casting and we followed the bracing protocol to the letter.

And all went well until we took Jude out of his night-time boots, right before his sixth birthday.


He began to relapse on his right foot. The relapse rate for kids who are treated properly and braced properly is only about six percent. So I guess our sweet Jude is proving that he truly is one special guy.

Tomorrow we go for a sedated MRI to rule out any neurological component. Since Jude relapsed very quickly, there is a small chance that he could have a tethered cord. Our neurologist feels confident that this is not the case, but an MRI has been ordered to confirm.


Once the MRI is complete and – assuming he does not have a tethered cord – we will schedule surgery for our little man. He’ll need to have an anterior tibial tendon transfer.

*sniff*

So, if you think of it, please keep Jude in your prayers. Needless to say, this mama is the tiniest bit anxious about tomorrow.


And, assuming we get the all clear on the MRI, Jude and I will travel to Iowa for his surgery. Then he’ll spend six weeks in a non-weight bearing cast (using a walker or wheelchair) and then a full six months to recover completely.

I don’t think this is going to be quite the summer Jude had planned.


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05.16.12 · clubfoot, Jude, six percent, special needs adoption 52

Comments

  1. kristi says

    May 16, 2012 at 9:46 PM

    Praying for your Mama’s heart tomorrow!

    Reply
  2. Wendy says

    May 16, 2012 at 9:47 PM

    Oh…I’m so sorry that you and Jude have to go through this. Will be thinking of you both tomorrow and praying for good news!

    Love the photos..the are gorgeous. Jude has grown so much in the last year. He looks so much older but is still every bit as handsome as ever!

    Reply
  3. Kathie Hikade says

    May 16, 2012 at 9:50 PM

    What a handsome guy. I will be keeping you both in my prayers!!
    Kathie in NY

    Reply
  4. Anna Schmidt says

    May 16, 2012 at 10:05 PM

    Poor littler guy:(……Will be keeping your family in my prayers

    Reply
  5. Patty Hull says

    May 16, 2012 at 10:06 PM

    Cute little feet! Thinking about him for the test tomorrow. I hope you get the answers he needs from the MRI.

    He is precious. Thanks for sharing about his feet… I wondered what “real life” treatment looks like.

    Reply
  6. Emily says

    May 16, 2012 at 10:06 PM

    Hugs and prayers!!!!

    Reply
  7. Kristin Hillukka says

    May 16, 2012 at 10:07 PM

    Oh, I will be keeping you and Jude in my prayers. We’ve been traveling down to Iowa weekly and my sweet Willem is in his 5th set of casts right now. They are amazing people there (and they think you are an amazing family)! I’m praying too, that my son will be healed with his casting, tenotomy, and bracing.

    Reply
  8. virginia says

    May 16, 2012 at 10:12 PM

    He is such a handsome little guy. I’m sorry to hear about this setback.

    Reply
  9. Jan says

    May 16, 2012 at 10:18 PM

    Those are such cute little feet though. You can’t be upset with them for being in that 6%. ๐Ÿ™‚ I will pray that his visit goes well!

    Reply
  10. Deborah says

    May 16, 2012 at 10:23 PM

    Sorry about the relapse. Hope all goes well tomorrow and the MRI shows better news. ๐Ÿ™‚

    Reply
  11. Lisa says

    May 16, 2012 at 10:32 PM

    Prayers for you and your sweet boy!!Prayers for good results!

    Reply
  12. Crystal Oh says

    May 16, 2012 at 10:50 PM

    Praying for Jude!!

    Reply
    • Carla says

      May 16, 2012 at 11:00 PM

      Praying Jude does not have a tethered cord. BTDT twice! Tendon transfer 3 times! I think the latter was an easier recovery for us all! God Bless.

      Reply
  13. Jennifer says

    May 16, 2012 at 11:18 PM

    Praying for you and Jude!!!!!

    Reply
  14. Yvette says

    May 16, 2012 at 11:23 PM

    Ok first of all was he the cutest baby ever or what!! Sorry LOL! Prayers for the MRI (it will be so nice to rule it out!) and prayers for a non weight bearing summer. Our little guy is having amputation surgery June 4th and will also be non weight bearing, I don’t even know how we are going to manage.

    Reply
  15. Holly says

    May 16, 2012 at 11:25 PM

    Elaina did really wells with her detethering surgery. Hardest part was her age and spunk which made keeping her on her back for 2 days nearly impossible but other than that really went well! If it is tethered cord will he still need the other surgery? Praying now. Perfect love casts out all fear. God is with you and at work for good. Hold fast to Him. Hugs, Holly

    Reply
  16. Tonggu Momma says

    May 16, 2012 at 11:28 PM

    Stefanie, I’m so sorry to hear this, and of course he will be in my prayers.

    Reply
  17. Kelli Moran says

    May 16, 2012 at 11:55 PM

    Stephanie,

    About four years ago, I called you to talk about sweet Jude and his clubbed feet. I was seeking guidance and wisdom in an area that was all knew to us.

    When we brought our daughter home from China she, too, had clubbed feet. With her only being 14 months old we wanted to see someone who wouldn’t go right to surgery. We wanted to try casting first. After talking to you we contacted Dr. Ponsetti and in less than a week we were in our car driving out to Iowa. After five castings and several years of wearing night shoes she started to have a litle freedom but then the regression started. We waited and waited hoping that her right (yes, her right just like Jude’s) foot would correct itself but it never did. It actually started getting worse. It got to the point where she could not even pick up her big toe when she was walking. We decided to go ahead with the surgery and she had a tendon transfer on both feet last April. She got around on her hands and knees crawling and was a tropper through it all. She now is doing great and other than her button that she kept which held her tendon in place as it healed and a small incision line on the top of her foot, there is no sign that anything was done. She is running and not falling, picking up her toes without dragging, and a lot less injured.

    Praying for Jude and for you guys that the whatever is decided you will find peace in knowing that God will be walking you through it all.

    Blessings,
    Kelli

    Reply
  18. Mona says

    May 17, 2012 at 12:27 AM

    Hi Stefanie, My youngest girl (now two years) was also born with severe clubfoot involving both feets. I know what you have gone through and I’ll definitely keep Jude in my prayers! I hope we wont be in that 6 percent ๐Ÿ™
    It was also interested to see the pictures and story on the adoption webisite. I’m embarrased to say but I don’t have any photos nor memories of my daughter’s feet when she was a baby…

    Take care! It will all go well!

    http://monaspicturesque.blogspot.com/2012/01/i-dreamed-dream.html

    Reply
  19. Sharon says

    May 17, 2012 at 4:54 AM

    I’ll be thinking of a very special boy and his Mama.

    Reply
  20. Donna says

    May 17, 2012 at 5:07 AM

    So sorry to hear this. Praying for both of you as you face the days ahead….

    Reply
  21. michele rider says

    May 17, 2012 at 5:14 AM

    Sending my thoughts and prayers from Maine. Please tell Jude Hello and I miss Him!

    Reply
  22. Aus says

    May 17, 2012 at 5:27 AM

    Of course we’ll be praying – and Jude – bummer on the summer but worth it in the long run!!

    hugs – aus and co.

    Reply
  23. Kelly says

    May 17, 2012 at 5:28 AM

    Thoughts and prayers for you and Jude … hope all goes well!

    Reply
  24. Chris says

    May 17, 2012 at 6:25 AM

    awwww, poor baby! and poor Momma!

    Praying for both of you!

    (((hugs)))

    Reply
  25. Rebecca says

    May 17, 2012 at 6:29 AM

    Prayers for your sweet boy! He is just absolutely adorable!
    My two youngest have both had tendon transfers, so we know all about the non-weight bearing casts.
    Hope you get some answers from the MRI.

    Reply
  26. Ali says

    May 17, 2012 at 6:39 AM

    As special as all your children are, Jude dug deep in my heart the first time I saw his pic on your blog. He’s tough, you are tough, and God is awesome. I have no doubt that Gods got ya in this, and you certainly will be covered in my family’s prayers.
    Allison

    Reply
  27. laine says

    May 17, 2012 at 7:08 AM

    Praying this morning, Stefanie! I just love that sweet little “andthencamejude”!!!!! Keep us posted..

    Reply
  28. Laura Kahl says

    May 17, 2012 at 7:15 AM

    Praying for you and Jude today. Poor guy. ๐Ÿ™

    Reply
  29. Mary says

    May 17, 2012 at 7:27 AM

    I’m so sorry to read this! We were just with Dr. M last week, and he was trying to prepare us for the possibility of the ATTT, too. Grace still has some tightness on one side, but generally doing well with no sign of relapse yet. But Jude’s experience is reminding us that there are never any guarantees. We’ll be praying for you all!

    Reply
  30. Rain says

    May 17, 2012 at 8:07 AM

    Good thoughts and prayers going your way! Great last pic-of the two of you! Love shining thru!! Summer will be different-but good with all the love all around!!~~Rain

    Reply
  31. Sarah says

    May 17, 2012 at 8:34 AM

    Good luck with the MRI.

    Reply
  32. Kelly-Marie says

    May 17, 2012 at 8:54 AM

    Hugs and kisses for you and your family hope you get some good news x x

    Reply
  33. Shari says

    May 17, 2012 at 9:19 AM

    Stephanie,
    We only live about a 1/2 our from the U of I. As you know, they do amazing work there and I know they’ll take good care of him. If you need company, shoot us an email and we’ll come take you out.

    Shari & Amelia

    Reply
  34. Jill Shelton says

    May 17, 2012 at 9:41 AM

    Praying for you and family sweet friend. I’ll be in your area August (for our move) and would love to help out as often needed.

    Reply
  35. Hannah Norris says

    May 17, 2012 at 9:42 AM

    Praying for that sweet boy. We are going through something similar over here… it’s not bilateral club foot, but we are looking ahead to surgery on my little ones ankles and hips. ๐Ÿ™

    So hoping no surgery for Jude!

    Reply
  36. Rebecca says

    May 17, 2012 at 10:58 AM

    There is a Shriner’s Hospital in St Louis that does wonders with clubfoot. If you ever go there for treatment, let me know because that’s where Joey goes for his orthopedic problems. I’d love to meet you and your family. ๐Ÿ™‚

    Also, LE Valgus. Could he be developling LE Valgus?

    Reply
  37. Heather says

    May 17, 2012 at 11:07 AM

    Praying for your heart, his foot, and the doctors’ wisdom.

    Reply
  38. Annie says

    May 17, 2012 at 11:23 AM

    Oh dear Stefanie, you know we just went through this with Lizzie and the doctor decided to try AFO’s on her first. However, he thinks we may be dealing with a drop foot instead of a relapse. I am not so sure. Anyway, I will be thinking about sweet Jude and his beautiful Momma!!!!!

    Reply
  39. TanyaLea says

    May 17, 2012 at 12:22 PM

    Awhhh, praying for Khloe’s fellow ‘Fujian’ brother!! I know this has to make your heart uneasy, but know we are all joining together in one accord, lifting your precious little man up before the Throne of Grace! Keep us posted!!

    Blessings & Hugs,
    ~ Tanya

    Reply
  40. Erin says

    May 17, 2012 at 12:32 PM

    Stef,
    I’ll be praying for Jude’s feet…and your peace of mind. We still see Dr M in Iowa every few months for Meizhi’s feet too. Only she’s the opposite of Jude; Meizhi’s tendons are still insanely loose and are not tightening like they should. So she’s turning in again but Dr M says its Mind over body now, not physical. Just remember how far he (and you all) have come and this is just a small stage in his very long blessed life he’ll have. Sending prayers from the midwest.
    Erin, Meizhi and Kiomi

    Reply
  41. Jenn says

    May 17, 2012 at 12:59 PM

    He is adorable. Poor baby. I hope all goes well. Prayers.

    Reply
  42. Laurie Cleveland says

    May 17, 2012 at 1:27 PM

    Wow! I wish I lived closer to Iowa City so I could offer you a place to stay! We live in Des Moines – it takes us a good 2 hours to get there when we go see the eye specialists. :(. If you’re in town June 1st, my oldest daughter and I will be at the learning disabilities clinic this time – just look for the tall, white haired Chinese girl with her mobility cane!!

    Good luck to you and Jude!!

    Reply
  43. Catilin says

    May 17, 2012 at 4:27 PM

    Hi,

    My daughter (now 5) was born with a very severe left clubfoot. She had the heel cord surgery at 6 weeks, wore the braces for 3 years and we noticed her relapse right around her 4th birthday. After a gait study about a year ago, we tried a series of 6 one week casts to get her foot back on track. After these, we waited six months to find her foot was relapsing again. In November we started serial casting again and in January she had a tendon transfer and another heel cord extension. 6 weeks in a wheelchair, and 4 weeks in a boot later, our daughter is doing remarkably well. We can already see a drastic improvement in her gait and she is not tripping/ falling nearly as much as she was before. I am happy to share more details about the surgery- we were certainly not prepared for the extent of it going forward.

    You are in my thoughts and prayers.
    Caitlin

    Reply
  44. Holly says

    May 17, 2012 at 6:51 PM

    Many prayers for sweet Jude and his wonderful feet! Prayers for your MRI tomorrow and hugs to you.

    Holly

    Reply
  45. Melynda Dye says

    May 17, 2012 at 7:10 PM

    Our Jude is having this same surgery for his relapse on both feet June 15th! I Pray all goes well for your sweet Jude. We will pray for him by name for healing and understanding. Keep us posted.

    Reply
  46. Football and Fried Rice says

    May 17, 2012 at 8:57 PM

    I am so sorry!! No mama likes news that one of their babies is having surgery!

    Reply
  47. Tracee says

    May 18, 2012 at 11:50 AM

    Seeing so “”So Tough” tshirt in the making…???

    Reply
  48. Miss p says

    May 19, 2012 at 8:35 PM

    I am a Physical Therapist who reads your blog. Consider asking Jude’s dr to prescribe him a roll about. This is covered under Tricare as DME. He will enjoy that much more than a wheeled walker

    Reply
    • NiHaoYall says

      May 19, 2012 at 9:41 PM

      Will definitely look into that for him – thank you so much!

      Reply
  49. Dusty says

    May 21, 2012 at 4:50 PM

    Behind in my blog reading, so I just got to this. Y’all remain in our thoughts and prayers for this. Hoping for the best for everyone and a fun summer for Jude regardless of the outcome!

    Reply
  50. Lisa S says

    May 27, 2012 at 11:23 PM

    Thank God for Dr. Ponseti! His technique has saved so many from unneeded surgeries and pain from arthritis as they get older. Hope his setback is minimal! (((HUGS))) to Jude!

    Reply

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I'm Stefanie. Wife to one, mom to 13. Occasional blogger and t-shirt maker. Wannabe photographer and exerciser. Constant grace-needer and orphan advocator. more
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