I am so happy you are home.
You are getting stronger every day and can sit up so well now. In fact, you love to sit on the rug with your siblings, with your toys spread out in front of you. You are most definitely the center of attention and everyone scrambles to try to find the one toy that will make you giggle the most.
And the second they find that toy that you especially love, and put it into your little hands, you spin around with your back facing us. So no one can take your toy from you.
You are eating so much better. You eat almost anything we give you, but you seem to especially enjoy sweet potatoes, pasta, oatmeal and bananas.
Often you eat a lot more than a little one your size ought. Your tummy gets so full, you look like you might pop. But we want to give you all you ask for right now.
Your sleep schedule is all over the place. Some days you wake up at 7 and some days at 9. Some days you nap for 2 hours and some days for 5. But you always wake up wide-eyed and curious. Wondering.
Your breathing continues to be labored. We are using inhalants and a round of oral steroids to try to alleviate some of the difficulty you are having, but so far we haven’t gotten to the bottom of your pulmonary issues yet. We do know that your little lungs have endured too much for too long without proper treatment. Misdiagnosed. Underdiagnosed. Overdiagnosed.
And, whatever it takes, we’ll do all we can to find relief for your little body.
You are such a happy little bug, smiling, giggling and interacting with me and your daddy remarkably well for a child who has transitioned as much as you have. But sometimes we hold you too close. Or look into your eyes for too long. You’re not used to that kind of closeness.
Sometimes you look away. And sometimes you hit – because you’re overwhelmed. And we take a step back, and just love you the best we can from as close as you’ll let us get.
We know that we are only human, and can’t possibly solve every problem you’ll ever face, little one.
But for now, by the grace of God, we are blessed and honored to be able to solve a few.
Because we are yours now. And when we cannot solve a problem for you, we will stand with you as you wrestle with it. We will battle alongside you when we can. And when we can’t, we will cheer you on from the sidelines, with all of our might.
Oh, Clementine. You may not know it yet, but you don’t ever have to worry about being alone in this world again.