Two months ago we were in China.
We had just arrived in Guangzhou with a wheezy, vomiting, rash-covered little girl.
It’s so good to be in this side of those two months.
Clementine started physical therapy this month and has just mastered pulling up to stand. On her own, y’all. We want her to learn how to crawl before she learns to walk, but Clementine isn’t convinced.
(She did a 180 turn, ending with her back to our PT, in response to her trying to encourage Clementine to crawl. We died.)
Our girl may not say much yet, but she certainly knows how to communicate.
On the 12th of January Clementine had surgery to have tubes placed and her adenoids removed, as well as a bronchoscopy and laryngoscopy to get the lowdown on her airway. It was a long week of recovery afterward, but she’s finally back to herself.
And then some. In the last several days she’s been sleeping better than ever and drinking more fluids than ever. Double bonus.
On the subject of eating, Clementine has gained three pounds since that saddening weigh-in at the medical in China. She’s up to 20.6 pounds of sweetness.
Our pediatrician feels like she’s on a very healthy growth curve, considering children with Down syndrome are typically on the small side.
So yay for increasing appetite and chubby cheeks.
Clementine is learning more signs. In addition to being able to sign more, she now signs (and says) dada. She doesn’t have the sign *exactly* right, but what she she lacks in technique she more than makes up for in enthusiasm.
She currently has zero interest in saying mama, though. And that’s okay. Clementine knew that word well before she ever met me.
She used that name for another mama. In another place. A mama that I believe she loves very much.
Despite not having a name for me, she and I are thick as thieves. Our time together at the hospital – rocking, snuggling, watching Despicable Me 2 for the third time – served as a chance for her to lean on me a little more deeply.
And things have been different ever since. A few nights ago she actually chose to fall asleep on me – a big, beautiful leap from not being able to tolerate any skin to skin at bedtime. And I cannot tell you how fun this little bug is to snuggle.
We might be facing an additional, much more significant surgery for Clementine in the coming months. The ENT discovered a very rare congenital defect in Clementine’s trachea. She will be undergoing additional testing next week to help determine exactly what the best next steps will be.
In the meantime, we will continue to trust in the One who leveled mountains to bring her home.
And we will continue to be crazy grateful to have her here. Where we can love her. Protect her. Comfort her.
I’m not her first mama. I’m not her second mama. But, by God’s grace, I get to be her forever mama.
amks2014Aimee says
Your photography captures it all. Simply stunning g!
tg says
beautiful!
bunnysmom says
love her!
mgatwood says
Beautifully written. She’s is a doll baby.
Kelleyn says
love these photos! I tried a similar shot with our daughter! She was terrified of the balloons and then they all broke from the wind. Darling photos
dawn says
you just can’t beat a good love story and Clementine is my favourite. So so beautiful
Paula says
I just discovered this blog a few days ago. Happy to follow your journey. What a beautiful little ball of joy!
Jeanne Minney says
Beautiful baby and beautiful photographs. We are currently both on Lisa’s phone photography class but you are miles better than me. Sending prayers for good health for little Clementine.
Annie says
Beautiful sweet friend, just beautiful!!!!
kcblogs5y says
Love this post, especially the last 3 lines. May God continue to bless you.