Ni Hao Y'all

when east meets south

Sydney

Sydney is a precious little one who needs to be lifted in prayer. Her mom, Sandy, contacted me recently… a mom who desperately wants to do anything she can to help her daughter live a long and healthy life…


We brought our daughter home from China in Dec. 2006, she was a special needs baby with a diagnosis of cavernous hemangioma and concave chest. The hemangioma was bad but treatable. Shortly after coming home we found out her true diagnosis – NF1 (neurofibromatosis) It’s a genetic disorder, actually the most common type occurring in 1 out of every 3000. Symptoms can vary from nearly none to multiple. Sydney unfortunately has a very large tumor, it is wrapped around her left lung, her aorta, trachea, and her spinal cord. It also protrudes from her back. You would NEVER know she has anything wrong with her. There is no cure and the only treatment option is surgery. Sydney is NOT a candidate for surgery- there is just TOO much involvement. The ortho Dr. was hoping to have her chest repaired to help alleviate pressure on her spine as she has developed scoliosis (although I can’t tell) but this too is out of the question, it would just be too risky. There are a few clinical trials coming up that may offer a glimmer of hope. I would so appreciate a prayer request on your blog – we need all the prayers we can get! Please pray for Syndey and pray BIG! God knows what she needs.
~Sandy

Will do, Sandy. Gladly 🙂

Comments

  1. Stefanie,

    THANK YOU SO MUCH! I am just speechless…We SO appreciate each and every prayer on Sydney’s behalf.
    Thanks again and Blessings,
    Sandy

    Reply

  2. Oh Stef. My heart just breaks! Look at that beautiful face!! I prayed for her today and I will continue to pray. Lord Jesus, please wrap your arms around this precious family… lay your healing hands on little Sydney and give the doctors wisdom that can only come from THE GREAT PHYSICIAN.

    Blessings,
    Rebecca

    Reply

  3. You can count on me to lift this sweet girl up in prayer. We serve a God who heals and restores.

    Please keep us posted with updates.

    In Him,
    Lori

    Reply

  5. I will definitely keep that sweet little girl in my prayers! I just recently learned about NF. My friend has twin nine year old boys who were diagnosed with the disease. It's something not many doctors even know much about! Thank you for sharing this story. We will pray, pray, pray for Sydney, her family & the doctors!

    Blessings, Rebecca

    Reply

  6. We, as a family, have seen God heal things that man says are impossible (MS for one!). Nothing is too difficult for our ALmighty God. We will put a picture of Sydney on our family prayer board and pray daily for her complete healing. God is ALWAYS faithful! We pray peace for her family as well. Thank you for making us aware of this need. We consider it a privilege to pray for such a need!
    Praying already in Colorado,
    Linn (for all)

    Reply

  7. Stefanie,

    Thanks for posting about this precious child. My heart aches for Sydney and her family. Will definitely be sending up prayers on their behalf. God bless.

    Reply

  9. Sydney is absolutely precious! I will keep her in my prayers daily. That miracles will happen for this beautiful child and her family.
    Amy

    Reply

  11. Jesus says, “You do not have, because you do not ask”…so, Lord, we are asking for the supernatural healing of Sydney’s tumor. We pray that it’s growth and spread would be contained and even that it would shrink to nothing. We pray for a straightening of her spine, as well. Nothing is too hard for You, God. We recognize you as the ultimate, miracle-working healer. In Jesus’ name we pray…Amen.

    Reply

  12. As someone who knows Sydney, let me again say….she is just precious! She is so sweet and loving…..just a doll baby!

    We will continue to pray for Miss Sydney!

    Reply

  13. Will be praying and will have our 4 little prayer warriors praying too. I told them about Sydney, so she is on all of our hearts. With love from SC. Ang

    Reply

  16. My uncle had this disease and I really feel for Sydney and her family. My thoughts and prayers are with them.

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  19. Oh Stefanie,

    This hurts my heart – I am heading over to add Sydney to my prayer list. Thanks so much for posting this. We will faithfully pray for this gorgeous little girl and her precious family. Our great big God has plans we could not even foresee, so I pray His healing hands wil guide this family and heal Sydney.

    Hope you are well.
    Love,
    Heather

    Reply

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