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when east meets south

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revisit

Headed to Boston today for a return visit to the geneticist.

Not gonna lie, I’m a bit nervous. Not sure if the doctor will have more questions… or some answers.

The scary part? I’m not sure which I’d rather hear.

Vivienne just so darn perfect to us. In every way. So it’s kinda hard to talk with specialists about “limitations”, “genetic testing” and “syndromes”.

I’ll let y’all know the news, whatever it is. I gotta say, it’s been a big comfort to have y’all along for the ride, as we’ve waited (and might possibly wait some more) for the answers about Vivienne’s medical diagnosis.

Say a prayer for our girl, if you think of it. We’d really appreciate it.

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07.20.10 · dwarfism, Vivienne 40

Comments

  1. Stacy says

    July 20, 2010 at 12:08 PM

    Lifting you all up this morning!

    Reply
  2. Kristi says

    July 20, 2010 at 12:14 PM

    Praying for sweet Vivi!

    Reply
  3. Somewhere In The Sun says

    July 20, 2010 at 12:21 PM

    Praying…

    ~Lynn

    Reply
  4. Kathy says

    July 20, 2010 at 12:36 PM

    Vivi is so cute ! I am praying for you.

    Reply
  5. Chris says

    July 20, 2010 at 12:42 PM

    Got your sweet little girl covered in prayers!!!

    Reply
  6. Carolin says

    July 20, 2010 at 12:51 PM

    Will do!!! Have a safe trip!

    Reply
  7. Hoots Momma says

    July 20, 2010 at 12:59 PM

    Just said a prayer. Y'all will be on my heart today. God is faithful. He will see y'all through it!

    Reply
  8. Tara Anderson says

    July 20, 2010 at 1:24 PM

    Praying for you and Vivi!!!!

    Reply
  9. Lost and Found says

    July 20, 2010 at 1:56 PM

    You're right, she is already perfect and will soar regardless of any label given to her. All that matters is that she believes that as she gets older.

    Reply
  10. Robyn says

    July 20, 2010 at 2:04 PM

    I am fearfully and wonderfully made – regardless of the answers she is a child of God and greatly loved! I will remember her and you in my prayers today!

    Reply
  11. Tracy says

    July 20, 2010 at 2:06 PM

    I will be praying that no matter the outcome you will be comforted by the Lords never ceasing presence.

    Reply
  12. funnylittlepollywogs says

    July 20, 2010 at 2:11 PM

    Prayers for sweet Vivi!

    Reply
  13. Ro, Ro, sa, ta, and so says

    July 20, 2010 at 2:21 PM

    Saying prayers and sending positive thoughts!

    Reply
  14. snekcip says

    July 20, 2010 at 2:25 PM

    Praying for Sweet Vivian

    Reply
  15. Katherine says

    July 20, 2010 at 2:29 PM

    Lifting you guys up!

    Reply
  16. Brittnie's Journey says

    July 20, 2010 at 2:31 PM

    A child of God – beautiful and perfect in every way! Holding you up in prayer today.

    Reply
  17. clearness says

    July 20, 2010 at 2:44 PM

    Lots of prayers for you to find the answers in which you seek and the strength and knowledge to handle and fix any news in which you receive.

    Reply
  18. Nancy says

    July 20, 2010 at 2:52 PM

    Prayers for sweet Vivi and whatever plans the Lord has for her. Oh my, she is so perfect.

    Reply
  19. Team Houston says

    July 20, 2010 at 3:51 PM

    Sure thing!! Hugs, Michele

    Reply
  20. chavafor4 says

    July 20, 2010 at 3:52 PM

    Praying for you all today.

    Reply
  21. Debra says

    July 20, 2010 at 3:59 PM

    May God continues His blessings upon you all, today and always.

    Reply
  22. Chandra says

    July 20, 2010 at 4:28 PM

    Will keep you in my thoughts and prayers today! May you feel His comfort and peace.

    Reply
  23. Jen says

    July 20, 2010 at 5:13 PM

    praying. for you. for your family and for Viiv.

    Reply
  24. The Gang's Momma! says

    July 20, 2010 at 5:13 PM

    Oh, praying today for you all! And this picture is just priceless. How DO you do it? Is your camera in your hip pocket all the time? Do you dress them that gorgeous all the time so you can maximize shots? I've gotta use that camera of mine more often, I think 🙂

    Reply
  25. Sean and Lisa says

    July 20, 2010 at 5:38 PM

    She's absolutely perfect and gorgeous to boot! 🙂
    Praying for answers and perfect peace.
    Much love!
    Lisa

    Reply
  26. Patricia/NYC says

    July 20, 2010 at 5:48 PM

    Praying for that sweet, precious Vivi & for you too!! Safe travels, my friend! You're in our thoughts & prayers, always!
    Hugs…
    Patricia

    Reply
  27. Suzy says

    July 20, 2010 at 8:12 PM

    Praying for your baby girl & you, too.

    Reply
  28. Nicole A. says

    July 20, 2010 at 8:41 PM

    Beautifully and wonderfully made, that sweet girlie! Praying for you all today!

    All the best,
    Nicole A. in OH

    Reply
  29. Terynn says

    July 20, 2010 at 8:48 PM

    Happy to pray.

    It will all be fine no matter what, because there is great love.

    Reply
  30. mamatree says

    July 20, 2010 at 9:05 PM

    Praying for ya'll!

    Reply
  31. Ashley says

    July 20, 2010 at 10:04 PM

    Praying alongside Miss Vivi!!

    Reply
  32. Desiree' says

    July 20, 2010 at 10:23 PM

    Praying!! I completely understand as we are about to go the same route with our Miss Rach

    Reply
  33. Gail says

    July 20, 2010 at 10:51 PM

    Hoping and praying all goes well. She is perfect and beautiful!!!

    Reply
  34. Emily says

    July 21, 2010 at 1:57 AM

    just remember what you said— she already is perfect– praying for peace for you while you wait:)

    Reply
  35. Wife of the Pres. says

    July 21, 2010 at 2:00 AM

    Praying and so understand where you are. We just got another diagnosis today for our sweet girl. Haven't had the courage lately to face the geneticist again but I know it is time. I also know we'll be seeing him for our Li'l Dude too.

    Anyway hugs, be safe and thank you for sharing so from the heart about the "big bad word": syndrome.

    Reply
  36. Melissa says

    July 21, 2010 at 3:30 AM

    She's perfectly and wonderfully made, no matter what. Prayers are with you!

    Reply
  37. Annie says

    July 21, 2010 at 3:40 AM

    Will say a prayer Stefanie!!!! Come what may, she is perfect and perfectly made for your family!!!

    Reply
  38. Jessica says

    July 21, 2010 at 6:31 AM

    I'm praying for you too. She is definitely perfect no matter what. I love seeing all your sweet updates on her. I just love how the older kids fight over her. So sweet.

    Reply
  39. Aus says

    July 21, 2010 at 11:08 AM

    Prayers offered for all you guys (however it turns out effect the whole family!) Ya know – like you – we've chased all the 'necessary testing' etc – but I wonder sometimes – do we really care? I mean – it's not going to change anything right? Still our child – still loved – still a family member – always will be – whatever is needed – you get the idea. But yeah – still we have the testing….makes me wonder sometimes why we really want to know…

    hugs – holding you guys close –

    aus and co.

    Reply
  40. Desiree' says

    July 21, 2010 at 6:10 PM

    You are so blessed to be parent to this precious little girl. Will be praying.
    I understand the teary feeling, there myself. Wondering if I even want to know, would it really change things?? We have three appointments next week, ortho, eye and gentics…

    Reply

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I'm Stefanie. Wife to one, mom to 13. Occasional blogger and t-shirt maker. Wannabe photographer and exerciser. Constant grace-needer and orphan advocator. more
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